For patients

ESGO is committed to the highest standards of data protection and transparency. All data collected within the ESGO Database is handled in compliance with EU data protection regulations (GDPR). Every participating centre is obliged to publish the patient information sheet at their institution.

As part of the project, ESGO collects and registers data from women treated for advanced ovarian cancer at centres participating in related studies. By keeping strict personal data protection measures, ESGO ensures transparent data processing and provides clear information to patients in compliance with all respective data protection regulations in place, in particular, EU Regulation 2016/679 (GDPR).

In view of the scientific research purposes, public interest in the field of public health, and ESGO’s legitimate interests in carrying out these research projects, processing of personal data in the context of these retrospective studies does not require the collection of patients' individual consent.

General information about the studies related to the ESGO Database is publicly available at the centres participating in the studies and on our website.

Any patient, however, may refuse to allow the inclusion of their data in the studies. If you are a patient who objects to participation in the current studies, please contact your treating gynaecologist at your hospital. You can also object by filling in the objection form (see below) and emailing it to database@www.esgo.org. In such cases, your personal data will not be included in the specified retrospective study.

In cases in which a centre’s local regulations require explicit individual consent of patients for inclusion of patient data in the study, ESGO will provide that centre with an Individual Patient Consent Form upon request (database@www.esgo.org).